Necrotising autoimmune myopathy
My wife has NAM (necrotising autoimmune myopathy). She was diagnosed last July and the hospital treating her used intagram IV plus privigen. Her CK level is still rising. She is feeling a little bit better but struggling to walk short distances. We suspect it might be an underactive thyroid. She was taking Lipitor, but that was 4 years ago. She is easily fatigued and is the worst case they have seen in Adelaide. We have done a lot of research on this – just running this past you to see if we are on the right line of approach.
Hello, thank you for your question about necrotising autoimmune myopathy. As you have explained there is a complex history of medical problems from the previous 4 years so we would recommend a visit to your GP to discuss the right line of approach to your wife’s condition.
Answered by the Health at Hand nurses