I have a condition called Stickler Syndrome
I have a condition called Stickler Syndrome, which is essentially a genetic mutation arising from a lack of collagen. Can I donate blood and one of my kidneys?
Thank you for your query.
Stickler Syndrome is a hereditary progressive group of genetic disorders affecting connective tissue, specifically collagen.
You asked two specific questions which will need to be answered by the specialised medical professionals with the appropriate expertise in the area, but hopefully the following information will provide some initial guidance.
If you are considering becoming a blood donor, you have to register with the NHS Blood and Transplant. Please call the Blood Donor Helpline on 0300 123 23 23, Monday to Friday, 8 am to 7 pm as you might need to be transferred to the Referral Team who can deal with your query.
If you are considering becoming a kidney donor, I suggest you contact your GP who will be able to refer you to the closest kidney transplant centre. In order to become an organ donor you will have to undertake a series of medical tests.
The donor evaluation process is to ensure the suitability of the donor and to minimise the risks associated with donation. The assessment is carried out by the donor assessment team following strict protocols. It can take between 3 and 18 months and involves a whole range of blood tests, scans and physical and psychological assessments.
The donor assessment team will then be able to advise if you are suitable for organ donation.
I wish you all the best with your proceedings.
Answered by the Health at Hand nurses
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