My maternal great grandmother, grand mother and mother all suffered and died from Motor Neuron Disease. What are the chance of me having it too?
Motor Neurone Disease (MND) is generally caused by a combination of different triggers but, in some cases, family history and genetic make-up can be significant. With a strong family history, your concern is wholly understandable and you may benefit from genetic counselling. This is not a form of psychotherapy but rather an opportunity for the facts to be clearly explained and accurate information given on the implications for you.
Whilst not beneficial to everyone with a family history of MND, genetic testing may be available from a neurological specialist to test for the 4 genes that are known to play a part in Inherited MND. However, it is important to bear in mind that results are not conclusive and therefore making the decision to be tested should be taken with considerable thought and due consideration.
Should you wish to consider genetic testing, please speak to your GP in the first instance. You may also find The Motor Neurone Disease Association a useful source of information on the subject.
Answered by Health at Hand nurses.
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